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Stroke Awareness - My Stroke Story

January 11, 2018


Warning: This is a long post, but this could help save you or your loved one's life! This message is important! Thank you for reading & helping me spread awareness to Strokes!

I feel compelled to write a post about Strokes today. You might be wondering what a stroke has to do with Frontotemporal Dementia. I guess in our situation the stroke and Frontotemporal Dementia don't have anything to do with being combined together, or as one. I was just my mom's caregiver when a stroke hit me. I was definitely blindsided by the stroke.

I had heard that caregivers sometimes pass away before the person they are caring for. I never really took those words seriously. That seemed strange to me. I really thought "how can caregivers get sick or pass away first?" I'm pretty sure now that is because stress can do a lot to your body. If you are feeling overwhelmed with your caregiving responsibilities, please, try to find some help, before it is to late! I wish I could turn back the time to where I didn't have to experience a stroke.

I was the main caregiver for my mom when I experienced a stroke. It was July 13, 2016 on a hot summer day, to be exact. I had been having bad neck pain and headaches for 2 weeks constantly. My head and neck hurt so bad even laying my head on a pillow. I had no relief whatsoever at anytime during those 2 weeks. I had tried everything to get rid of the pain, but nothing was helping. I was so desperate for any relief, so I decided to go to the chiropractor.

My stroke symptoms started while I was trying to get ready to leave the chiropractor office, after I had been adjusted, and massaged. It was a scary, terrifying, emotional, frightful, and confusing time all at once.

This is a post below, that I wrote on Facebook, about my Stroke experience. Written in May 2017.

Better late than never. I’m finally breaking my silence. . . .

You never know how strong you really are until you get knocked down a bit and get back up.   

I am so very thankful for everyone who visited me, sent flowers, fruit, balloons, & cards, offered service, helped with my mom, the calls/voicemails, texts, the prayers, and the many people who have asked how I am doing & continue to ask. None of this has gone unnoticed & it is appreciated so much!

I feel as if everything in life happens for a reason and this happened to only make me stronger and to change my life in a way that was needed. I am so lucky for my outcome and feel so very blessed.

I continue to heal every day and I can’t wait until I feel more like myself. I’m now almost 10 months post-stroke and I am so thankful to be alive! Strokes are real, strokes can happen to anyone. If it happened to me, it could happen to you.

Please be aware of stroke signs.

For me it was: confusion, slurring my words & couldn’t speak right, didn’t know who some people were by hearing their names, bad headache, bad neck pain (I also had a dissected artery in my neck that caused the stroke), blurry vision (everything all seemed together & blurry. This was the first symptom that started.), nausea, tiredness, discoordination, & vomiting.

Be prepared to be an advocate for your loved one. I thought it would get better if I laid down & finally realized it wasn’t going to get better. I went to the hospital after 4 1/2 hours that the symptoms started. I was aware of strokes (and, of course, never thought it could happen to me), but didn’t know what was happening to me at the time.

I was told in the emergency room that I was being admitted to the hospital because of a dissected artery. I was shocked when I got to my hospital room and heard the nurse tell me I’m too young to be having a stroke.

Keep on smiling! That is what has helped me get through my harder times. Many thanks to my family, friends, and especially to Paul Ahotaeiloa for being there for me non-stop and being my biggest supporter! 

My mom, who has Frontotemporal Dementia, had no idea what a stroke was. She had no idea what I was going through. She knew I was at the hospital, but I don't even know if she knew what that fully meant. I had just gotten home from the hospital, and my mom called me up, and asked me if I was going to pick her up. She was ready to hang out with me again. She would call me every day after my stroke and want me to come pick her up. She would treat me as if I was fine, and nothing happened to me. No matter what, my mom was unable to understand this time during my stroke. There was nothing I could say or do to have her truly understand what I was going through. I wanted so badly to be the same person that I was before the stroke, but I couldn't. That is probably the hardest thing for me to this day. I can't do as much, as I did before.

Another hard part of the stroke for me is that I became a new person. It has changed my whole being, and I am a new person. There are things that I can't do anymore or I have to do them differently now. I am slower. My energy gets used up quicker, and everything I do takes more energy to do than it did before.

I recently saw someone write that the aftermath of a stroke is worse than the actual stroke. I fully agree with that for my situation. A stroke is not like a surgery where you can recover from it after a few days/weeks/months or like a sickness that you can fully recover from. Once you have a stroke, you have some kind of disability whether you can see it or not. It is a permanent injury to the brain. The brain will never recover fully, but the brain can do some amazing things like what neuroplasticity does. Stroke survivors need support and they need to know that you are there for them.

Please share and help me spread awareness to Strokes. I don't want anyone to have to experience a stroke. It is something that I had never experienced before, and I hope I never have to experience another stroke again.

My thoughts and prayers go out to everyone who has had a Stroke, is going through a Stroke experience right now, or is going through the aftermath of a Stroke.

Stay  Strong!

Take  Care  of  Yourself!

This is why I am passionate about Stroke Awareness and Frontotemporal Dementia Awareness!

. . . and REMEMBER if you have any of these symptoms below, please, please, please, get to the hospital immediately (ASAP)! I wish I had gone to the hospital sooner than I did. That is why it is important for you to be someone's advocate, and help get them to the hospital, if you suspect a stroke is present!


Photo Credit to : https://www.stemcell.life/stroke.html


A BIG THANK YOU will always go to my, Aunt Linda P, for helping save us that week of the stroke! She stayed with my mom at her home and helped my mom out. Every caregiver needs a life saver in their life, and Linda P has been our life saver during all our moments we have needed help during this FTD process.

Sharing is caring! Thank you for sharing and caring!  :)

Thank you for your support!

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About Us

Help Save The Brain - Frontotemporal Dementia - #EndFTD #ThinkFTD

November 20, 2017



We are sporting our new t-shirts to help spread awareness about Frontotemporal Dementia! We are pointing to our shirts with our thumbs.

Have you heard of Frontotemporal Dementia before?

I had never heard of FTD until the day my mom was diagnosed with FTD. I was only aware of Alzheimer's and Dementia before. I had no idea there were different types of Dementia. My purpose and goal here on this blog has been to help spread awareness to Frontotemporal Dementia, so more people are aware that it exists. FTD is a heart-breaking dementia to have, just like all other dementias are.

Frontotemporal Dementia Definition -
(from the Association of Frontotemporal Dementia website)

"Frontotemporal degeneration (FTD) is a disease process that results in progressive damage to the temporal and/or frontal lobes of the brain. It causes a group of brain disorders that share many clinical features. FTD is also commonly referred to as frontotemporal dementia, fronto-temporal lobar degeneration (FTLD), or Picks disease."

FTD Facts - 

FTD usually occurs between the ages of 50 and 60, but this dementia has also occurred in younger ages, as well. The youngest being in the 20's and the oldest as being in the 80's.

There are currently no treatments to slow or stop the progression of this disease.

FTD affects the frontal and temporal parts of the brain.

FTD affects an estimated 50,000-60,000 Americans, which was noted in 2011.

The length of FTD can be anywhere from 2-20 years after onset. The median length is 8 years.

FTD affects decision-making, personality, social behavior, language, memory, and more.

FTD is often misdiagnosed as depression, psychiatric problems, or movement disorders. (They thought my mom's problem was depression and psychiatric problems at first, and it took us a long time, to finally find out the real problem, my mom was dealing with.)

FTD is one of the more common dementias that occurs to the younger aged population.

There are subtypes of Frontotemporal Dementia which include: behavioral variant FTD (bvFTD), primary progressive aphasia (PPA) which affects language, and the movement disorders progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD).

For the complete FTD Facts, please visit: 

Thank you for reading and taking the time to learn about Frontotemporal Dementia! You are helping me in this goal, by reading this post!

I appreciate it more than you will ever know! My mom can't help raise awareness with her voice, but I can help her, by using my voice for her! I wish she knew how much of an impact she is making. My mom does not realize she has Frontotemporal Dementia, and I have never been able to speak to her about FTD, with her understanding. 

Help Save The Brain! #EndFTD #ThinkFTD


Please watch the video below to see our fun t-shirt reveal to my mom! I helped her put her new shirt on. She had no idea that I was already wearing the same shirt.


Thank you to @WearingDementia for their fundraising and helping spread the word about Frontotemporal Dementia!

Please help us get the word out about Frontotemporal Dementia! Please share anywhere you can by clicking underneath the Share This Story area, also. Thank you! :)

About Us

My Purpose - For Becoming Public, About My Mom

July 24, 2017



It’s true! 

My mom was diagnosed with Frontotemporal Dementia at the age of 56. She is now 60.


I have never spoken publicly about this and I have only spoken to a select few about what I have been going through for the last 4 years.


I keep having this feeling that I need to share my mom's story to spread awareness and no matter what I do to try to get rid of that feeling, it keeps coming back to me & won't leave me alone.

I'm stepping out of my comfort zone and I'm becoming a voice for my mom. Please come read our story and please help me spread awareness on Frontotemporal Dementia. I would appreciate your support so much! Thank you! Thank you! 

I'm excited because my brother will be helping with some blog posts and his family will be starring in upcoming YouTube videos, that I will share. This will give you a chance to see two different interactions with my mom and how she is with each of our families, separately. You will be able to see my mom interact with her grandchildren and you'll see how young they are to have a younger grandma, who has been diagnosed with dementia.

Thank you to everyone who has been our supporters, so far! It means so much to us!


⭐️ Blog - http://ftdjourney.blogspot.com/

⭐️ Watch Our FTD Videos That Have Been Released (There are many more to come) -


https://youtu.be/SgRiBVS2jJo

P.S. Please be patient with me. I had a stroke a year ago and because  of that, sometimes, I'm kind of slow, but I have so much to share.






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