tag:blogger.com,1999:blog-758847018980619327.comments2023-05-22T07:03:22.375-07:00Cindy's Life Updates with Frontotemporal DementiaCindy D.http://www.blogger.com/profile/13634193749677595336noreply@blogger.comBlogger178125tag:blogger.com,1999:blog-758847018980619327.post-11362146318831730832019-08-14T06:45:49.522-07:002019-08-14T06:45:49.522-07:00After 12 years, we now know our family faces (and ...After 12 years, we now know our family faces (and has faced) the same loss, all this time. Not having the medical understanding for so long complicated it; but we still felt it. My wife, my children’s mother, our marriage, our happiness. Swallowed whole, by FTD. My heart goes out to you, wherever you are in this journey.ShaneChttps://www.blogger.com/profile/04999977150866453379noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-51484022715891101362019-07-17T18:24:55.460-07:002019-07-17T18:24:55.460-07:00Thank you for sharing Cindy's journey and your...Thank you for sharing Cindy's journey and your journey. My mom has been diagnosed with FTD as well and it honestly just helps so much to know that we are not all alone. I would not wish this on another family, but it is still comforting to know that there are others out there who understand what this means and how difficult it can be for a family to ensure their loved one with FTD can somehow continue to live a life filled with love, laughter and dignity even if that life does not really resemble the life that they previously lived. Kimhttps://www.blogger.com/profile/14284142982309516992noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-89236382242190711392019-03-31T22:54:42.285-07:002019-03-31T22:54:42.285-07:00Unconditional love. Unconditional love. Anonymoushttps://www.blogger.com/profile/00212053131793364184noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-29287551708846008672019-03-01T06:35:56.527-08:002019-03-01T06:35:56.527-08:00It sounds like you have an important mission. Bles...It sounds like you have an important mission. Blessings!Reidland Familyhttps://www.blogger.com/profile/12788657731470595451noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-88614297845713699692019-01-03T10:56:08.638-08:002019-01-03T10:56:08.638-08:00Oh, this is beautiful <3 how lovely that Debbie...Oh, this is beautiful <3 how lovely that Debbie came to visit and sing to your momma bear. Your mom looks so happy in this video, and their voices are gorgeous together. I hope you are taking care of yourself which I know can be difficult when tending to a loved one. Sending so much XOXOs your way and hope you had a very Merry Christmas and Happy New Year!mypixiebloghttps://www.blogger.com/profile/09135461083810124483noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-67705957664764099222018-12-23T07:37:35.951-08:002018-12-23T07:37:35.951-08:00MIL was diagnosed earlier this year at 51 but had ...MIL was diagnosed earlier this year at 51 but had been showing symptoms for over 2 years. We saw similar behaviour changes as she became very nasty, gossiping and saying cruel stuff about her children (she told everyone at church about our infertility). She too had some pretty odd driving habits (and eventually crashed the car into another family). <br /><br />However, FIL wouldn't accept that these was anything untoward about the behaviour changes (instead he thought it was the menopause). It was only when she started showing physical changes due to the associated MND/ALS she has (falling over, foot dropping etc) that he was willing to take her to the docs. She's the third in her family to have FTD and MND/ALS and we are now trying to navigate the world of genetic testing as MIL has the C90RF74 mutation. SavingScottshttps://www.blogger.com/profile/00816160126005103600noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-18195789068265906442018-10-02T19:07:02.077-07:002018-10-02T19:07:02.077-07:00WOW! NATALIE! YOU HAVE A SPECTACULAR BLOG HERE! ...WOW! NATALIE! YOU HAVE A SPECTACULAR BLOG HERE! YOU ARE SO TALENTED AND YOUR MOTHER WOULD BE SO PROUD TO KNOW HOW CREATIVE AND INSPIRING YOU ARE! SHE RAISED SOME INCREDIBLE CHILDREN. I LOVE, LOVE, LOVE YOU!LIFE, IDEAS, FAMILYhttps://www.blogger.com/profile/07434693379473231680noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-17597480384256082132018-07-30T20:24:35.296-07:002018-07-30T20:24:35.296-07:00Oh my gosh, what an ordeal, but you are seeing the...Oh my gosh, what an ordeal, but you are seeing the happy and the smiles while going through it. I'm so glad that Paul was there to help you with some things. I'm sure his help was dearly appreciated! That's awesome that you can take Cindy shopping and get her some new shoes----from her own closet! The best!A GAL NEEDS...https://www.blogger.com/profile/14134711904453411100noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-87044797529972052032018-07-15T00:18:37.979-07:002018-07-15T00:18:37.979-07:00I can not imagine how hard it was for you when the...I can not imagine how hard it was for you when the Doctors gave your the news :( Heartbreaking to hear such sad news about your Mom.I hope things continue to get easier for you all. Clairehttps://www.clairejustineoxox.com/2018/07/happy-friday-13th.htmlnoreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-90512716400776704582018-06-06T19:04:39.136-07:002018-06-06T19:04:39.136-07:00One thing that is certainly good is that she still...One thing that is certainly good is that she still remembers you! I saw the video where a son tries everything he could think of to get his mom to remember who he was, all to no avail. So heartbreaking when that actually happens. She looks in good spirits now! It's so cute to see her texting you!A GAL NEEDS...https://www.blogger.com/profile/14134711904453411100noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-45209679896756072112018-05-29T15:07:11.634-07:002018-05-29T15:07:11.634-07:00Oh my goodness, I'm so sorry you had to go thr...Oh my goodness, I'm so sorry you had to go through this! How difficult for you to go through all this without your Mom able to help you. Thank you for sharing so openly and honestly. Honestly, this post will help so many, and may well save lives. Praying you feel fitter and stronger every day. April J Harrishttps://apriljharris.comnoreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-68012459016203246962018-05-17T22:41:36.806-07:002018-05-17T22:41:36.806-07:00That was such a sweet post. I hope my kids rememb...That was such a sweet post. I hope my kids remember that I taught them some of those very valuable things to them. Thank you for sharing all that with us. Mary K.https://www.blogger.com/profile/17696218067214163344noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-44472060508850196972018-05-12T04:46:43.533-07:002018-05-12T04:46:43.533-07:00Aw, what a sweet tribute to you mom. Aw, what a sweet tribute to you mom. Joanne https://www.blogger.com/profile/01212516924342195282noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-25256087609130649512018-05-10T20:02:20.984-07:002018-05-10T20:02:20.984-07:00I love all of these stress-relieving methods! I es...I love all of these stress-relieving methods! I especially love the reminder about positive affirmation. We need to have much more positive self-talk in our lives to counter all the negative thoughts and negative commentary all around us! A GAL NEEDS...https://www.blogger.com/profile/14134711904453411100noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-40304519926195294272018-05-09T09:43:48.049-07:002018-05-09T09:43:48.049-07:00I love this list so much. The small everyday thing...I love this list so much. The small everyday things (I find) can be the biggest stress relievers; like giving thanks for something we'd ordinarily take for granted. And exercising, journaling, and listening to meditation always helps me, too. Last night I had a bout of insomnia, and I could have used that guided sleep meditation! Thank you for sharing. <br /><br />Also, this! "The truth is everyone needs all the support they can get while going through stressful situations!" Yes. It absolutely resonates, and everyone needs to reach out for help! XOXO and sending all my best wishes to you and your momma! mypixiebloghttps://www.blogger.com/profile/09135461083810124483noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-46838651287164511112018-04-22T11:49:29.176-07:002018-04-22T11:49:29.176-07:00Ooooof *HUGS*
You know, something that always str...Ooooof *HUGS*<br /><br />You know, something that always strikes me when I read your comments is when you tell me how great it is that I'm open and honest, when I think just the same of you <3 And that there must be so many people you are helping, just by sharing this journey with your readers. I'm so sorry that you have to go through this, and I'm sure it must be heartbreaking to see your mom's limitations, but what a blessing that she has you as a daughter and a wonderfully supportive network of people around her <3 <br /><br />Thank you for sharing your heart--and your mom's spirit!--with all of us. She sounds like such a beautiful soul--just like her daughter :) XOXO and hope you're having a wonderful weekend, sweet friend. mypixiebloghttps://www.blogger.com/profile/09135461083810124483noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-61966927782899811232018-04-22T04:17:16.426-07:002018-04-22T04:17:16.426-07:00I am sorry to read this. I can imagine it is so ha...I am sorry to read this. I can imagine it is so hard for you to watch your Mom miss out on these special times together :(<br /><br />Thanks for sharing at Welcome To The Weekend Blog Hop.Clairejustinehttps://www.clairejustineoxox.com/noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-55200654348645862372018-04-18T17:05:29.238-07:002018-04-18T17:05:29.238-07:00Thank you! That turned out to be a good photo of u...Thank you! That turned out to be a good photo of us together. Thank you for stopping by and watching the video, too! :)Cindy D.https://www.blogger.com/profile/13634193749677595336noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-40781633854081789762018-04-17T14:59:43.463-07:002018-04-17T14:59:43.463-07:00That is so fun! What great memories and a great tu...That is so fun! What great memories and a great turn-out! Loved the mom & daughter photo! Also loved the video where you guys had to do it over 'cause it was too quiet, like sacrament meeting! Too funny!A GAL NEEDS...https://www.blogger.com/profile/14134711904453411100noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-22119311851524705702018-04-02T23:19:55.064-07:002018-04-02T23:19:55.064-07:00You are so understanding of your moms needs. We ca...You are so understanding of your moms needs. We can all learn from this.<br /><br />Kathleen<br />Blogger's Pit StopKathleenhttps://www.blogger.com/profile/16559092855185240910noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-38952787609804998312018-03-20T12:19:38.271-07:002018-03-20T12:19:38.271-07:00Stopping in to say hi and to let you know that I&#...Stopping in to say hi and to let you know that I'm thinking about you. Sending all my love, and hope you are having a great week! XOXOmypixiebloghttps://www.blogger.com/profile/09135461083810124483noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-88730696716718452832018-03-14T09:41:49.204-07:002018-03-14T09:41:49.204-07:00<3 <3 <3
Oooof... This is so heartbreaki...<3 <3 <3<br /><br />Oooof... This is so heartbreaking. To know that something is happening, but not be able to make heads or tales of it. I'm so glad that your mother at least was able to turn to pen and paper, and that she's let you in to help her on this journey <3 You are such a wonderful daughter, and she's so very lucky to have you. <br /><br />XOXOmypixiebloghttps://www.blogger.com/profile/09135461083810124483noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-76253932422099463592018-02-24T06:55:08.341-08:002018-02-24T06:55:08.341-08:00Your mom looks like a sweet lady! My mom teaches c...Your mom looks like a sweet lady! My mom teaches chair yoga at the assisted living in town, they all love it so much, and they are such sweet people to be around! My grandmother was in there for awhile too, it was definitely an adjustment for her, but ultimately the best decision :)Alexis @ Chemistry Cachethttps://www.blogger.com/profile/08967770892542074360noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-27479683738127111652018-02-23T11:30:28.274-08:002018-02-23T11:30:28.274-08:00My in-laws are adjusting to assisted living. This...My in-laws are adjusting to assisted living. This is their second one. The first one just didn't work out for them. Now they are happy where they are living and we don't have to worry anymore.candyhttps://www.blogger.com/profile/05082238123921950824noreply@blogger.comtag:blogger.com,1999:blog-758847018980619327.post-35213344509683092142018-02-23T02:21:42.722-08:002018-02-23T02:21:42.722-08:00Your journey is complicated and I am happy that I ...Your journey is complicated and I am happy that I can travel the path with you.Carol @Comfort Spring Stationhttps://www.blogger.com/profile/18308702098757071897noreply@blogger.com