Quotes

Remember These Things

January 17, 2018


I have been blessed to have my mom be my biggest cheerleader in life! My mom would motivate me, give me sweet messages, and just try to help pick me up whenever she saw that I needed it. I have been blessed to find reminders of these things still to this day!


I hope this reminder helps someone out there that needs to hear this message today! Please share this message with someone who might need to see this message today!

YOU ARE Valued,

YOU ARE Precious,

YOU ARE Needed,

YOU ARE Loved.

This is just a reminder to tell people the way you truly feel about them, if it's positive. Let them know these things before it is to late. Be someone's cheerleader. Be someone's supporter. Just lift someone else, who needs a lift.

I am my mom's biggest cheerleader now. I'm happy that my mom is still able to lift others with her past messages to me.

Let's help lift each other up higher and higher!

And Always Remember . . . .

You are valued,

You are precious,

You are needed,

You are loved!





About Us

Stroke Awareness - My Stroke Story

January 11, 2018


Warning: This is a long post, but this could help save you or your loved one's life! This message is important! Thank you for reading & helping me spread awareness to Strokes!

I feel compelled to write a post about Strokes today. You might be wondering what a stroke has to do with Frontotemporal Dementia. I guess in our situation the stroke and Frontotemporal Dementia don't have anything to do with being combined together, or as one. I was just my mom's caregiver when a stroke hit me. I was definitely blindsided by the stroke.

I had heard that caregivers sometimes pass away before the person they are caring for. I never really took those words seriously. That seemed strange to me. I really thought "how can caregivers get sick or pass away first?" I'm pretty sure now that is because stress can do a lot to your body. If you are feeling overwhelmed with your caregiving responsibilities, please, try to find some help, before it is to late! I wish I could turn back the time to where I didn't have to experience a stroke.

I was the main caregiver for my mom when I experienced a stroke. It was July 13, 2016 on a hot summer day, to be exact. I had been having bad neck pain and headaches for 2 weeks constantly. My head and neck hurt so bad even laying my head on a pillow. I had no relief whatsoever at anytime during those 2 weeks. I had tried everything to get rid of the pain, but nothing was helping. I was so desperate for any relief, so I decided to go to the chiropractor.

My stroke symptoms started while I was trying to get ready to leave the chiropractor office, after I had been adjusted, and massaged. It was a scary, terrifying, emotional, frightful, and confusing time all at once.

This is a post below, that I wrote on Facebook, about my Stroke experience. Written in May 2017.

Better late than never. I’m finally breaking my silence . . . .

You never know how strong you really are until you get knocked down a bit and get back up.   

I am so very thankful for everyone who visited me, sent flowers, fruit, balloons, & cards, offered service, helped with my mom, the calls/voicemails, texts, the prayers, and the many people who have asked how I am doing & continue to ask. None of this has gone unnoticed & it is appreciated so much!

I feel as if everything in life happens for a reason and this happened to only make me stronger and to change my life in a way that was needed. I am so lucky for my outcome and feel so very blessed.

I continue to heal every day and I can’t wait until I feel more like myself. I’m now almost 10 months post-stroke and I am so thankful to be alive! Strokes are real, strokes can happen to anyone. If it happened to me, it could happen to you.

Please be aware of stroke signs.

For me it was: confusion, slurring my words & couldn’t speak right, didn’t know who some people were by hearing their names, bad headache, bad neck pain (I also had a dissected artery in my neck that caused the stroke), blurry vision (everything all seemed together & blurry. This was the first symptom that started.), nausea, tiredness, discoordination, & vomiting.

Be prepared to be an advocate for your loved one. I thought it would get better if I laid down & finally realized it wasn’t going to get better. I went to the hospital after 4 1/2 hours that the symptoms started. I was aware of strokes (and, of course, never thought it could happen to me), but didn’t know what was happening to me at the time.

I was told in the emergency room that I was being admitted to the hospital because of a dissected artery. I was shocked when I got to my hospital room and heard the nurse tell me I’m too young to be having a stroke.

Keep on smiling! That is what has helped me get through my harder times. Many thanks to my family, friends, and especially to Paul Ahotaeiloa for being there for me non-stop and being my biggest supporter! 

My mom, who has Frontotemporal Dementia, had no idea what a stroke was. She had no idea what I was going through. She knew I was at the hospital, but I don't even know if she knew what that fully meant. I had just gotten home from the hospital, and my mom called me up, and asked me if I was going to pick her up. She was ready to hang out with me again. She would call me every day after my stroke and want me to come pick her up. She would treat me as if I was fine, and nothing happened to me. No matter what, my mom was unable to understand this time during my stroke. There was nothing I could say or do to have her truly understand what I was going through. I wanted so badly to be the same person that I was before the stroke, but I couldn't. That is probably the hardest thing for me to this day. I can't do as much, as I did before.

Another hard part of the stroke for me is that I became a new person. It has changed my whole being, and I am a new person. There are things that I can't do anymore or I have to do them differently now. I am slower. My energy gets used up quicker, and everything I do takes more energy to do than it did before.

I recently saw someone write that the aftermath of a stroke is worse than the actual stroke. I fully agree with that for my situation. A stroke is not like a surgery where you can recover from it after a few days/weeks/months or like a sickness that you can fully recover from. Once you have a stroke, you have some kind of disability whether you can see it or not. It is a permanent injury to the brain. The brain will never recover fully, but the brain can do some amazing things like what neuroplasticity does. Stroke survivors need support and they need to know that you are there for them.

Please share and help me spread awareness to Strokes. I don't want anyone to have to experience a stroke. It is something that I had never experienced before, and I hope I never have to experience another stroke again.

My thoughts and prayers go out to everyone who has had a Stroke, is going through a Stroke experience right now, or is going through the aftermath of a Stroke.

Stay  Strong!

Take  Care  of  Yourself!

This is why I am passionate about Stroke Awareness and Frontotemporal Dementia Awareness!

. . . and REMEMBER if you have any of these symptoms below, please, please, please, get to the hospital immediately (ASAP)! I wish I had gone to the hospital sooner than I did. That is why it is important for you to be someone's advocate, and help get them to the hospital, if you suspect a stroke is present!


Photo Credit to : https://www.stemcell.life/stroke.html

A BIG THANK YOU will always go to my, Aunt Linda P, for helping save us that week of the stroke! She stayed with my mom at her home and helped my mom out. Every caregiver needs a life saver in their life, and Linda P has been our life saver during all our moments we have needed help during this FTD process.

Sharing is caring! Thank you for sharing and caring!  :)

Thank you for your support!

Click on the share buttons below! 🙌 👍 ❤️



Caregiving

It's A Wrap, 2017!

December 31, 2017


I would say overall the year 2017 has been good to us! We have made it another year! I feel blessed, and hope you are all blessed in 2018!

Here are our top honest events that happened this year in 2017.

* - Let's start the count down - *

#12
Our mom's basement flooded due to a clogged pipe. Our mom used too much toilet paper in the toilet, time and time again. She simply forgot how to use the toilet properly.

#11
Our mom was moved into assisted living memory care.  She has enjoyed it living at the assisting living place, and she has never complained about being there.

#10
Our mom turned 60 years old this year! She didn't know how old she was turning this year or last year. 

#9
Our mom started wearing disposable underwear for the first time. Our mom refused to wear them prior years, and would tell me I could wear them myself, but she wasn't going to wear them. This year she started to wear them daily & she didn't refuse to use them.

#8
We noticed that our mom did not know her grandchildren or son's last name. All of their last names are the same as hers. She did not think they all have the same last names.

#7
Our mom enjoyed the start of summer with car rides. Going out became harder to do, due to incontinence issues. She still gets out and about with everyone's love, patience, & help.

#6
Our mom's cat, Tiger, got sick with cancer. RIP, Tiger!

#5
I made our blog available for the public to see. I had a feeling that wouldn't go away that I needed to share & educate others about Frontotemporal Dementia.

#4
Our mom's pains came back. She had stopped complaining about her pains throughout her bout with Frontotemporal Dementia. This is the first year that she started to complain about her pains that she had, prior to her FTD diagnosis.

#3
This is the first year that we have noticed that our mom didn't know the months or what year it has been. She hasn't been able to associate the holidays with which month it is, either.

#2
This is the first year that our mom let me help her shower. She needs assistance to shower now.

#1
Our mom's short term memory has been worse this year. It is the worst that it has ever been.

Our happiest moments were taking drives, watching tv, partying at Halloween & Christmas, visiting Tiger, listening to Bruno Mars, and just simply hanging out.

Our most trying moments were figuring out the incontinence issues, the flooded basement, and Tiger passing away. For me personally, it was having my mom go to assisted living. The thought of it, and the guilt I had, was very hard at the time. It has turned out to be one of the best choices we have made.

Our positive outlook - Our mom did not get sick during the year 2017. That's a big accomplishment. She would get sick at least once a year since she has had FTD. This year she made it without getting sick.

Our takeaway from 2017 - Be present. The "things" & "stuff" in life doesn't matter. It is the spending time with someone that matters the most. Our mom was able to walk away from her home full of "stuff" and none of the "stuff" mattered to her in the end. When I asked if she needed anything from her home her reply was "what's at my home?" That was very eye opening to me.

Happy New Year from us to you! 

Thank you for your support in 2017!

Our mission is to help spread awareness to Frontotemporal Dementia!

Holiday Fun

Christmas Fun 2017

December 29, 2017



We hope you ALL had a wonderful Christmas this year! We have felt blessed this time of the year. We have been very grateful to be able to spend another Christmas with our mom.

We were able to have a Christmas dinner & a party, Christmas Eve, at "Grandma's House". We made it as simple as can be for our mom. She enjoyed having all of her family together at one time. Our family isn't too big, so I don't think it's too overwhelming for her to have us all together.


Our mom's favorite activities were eating dinner, opening presents from her children/grandchildren, and dancing to Bruno Mars. She was quiet while watching a movie.  She livened right up when she heard Bruno Mars singing. Music has been our blessing to cheer our mom up.



Jon and I were able to drive together to go pick our mom up for the Christmas party! Our car drives usually look like this. We wear our biggest smiles that we can. This is why I feel like we are blessed! We smile every time that we are together! It's not just a "do I have to smile?", smile. It's our real, biggest smiles!

Our Christmas changes from last year -

◦  Our mom would open cards up this year, and not understand who they were from or what they said on the cards.

◦  Our mom wasn't as into the TV as she use to be.

◦  Our mom had to have help getting her food plate.

◦  Our mom had to continually use the bathroom and have help.

◦  Our mom had no idea it was December and Christmas during this month. She couldn't associate all of the Christmas decorations with what month it was. She also didn't know the reason why we celebrate Christmas.



Thank you to everyone who sent/gave my mom cards and gifts! She was definitely spoiled.

People with Dementia don't need much. They mostly just need your love, time, and support. 

I just wanted to shout out to BeeHive Homes & The Salvation Army (Angel Tree) for giving my mom a present from "Santa". It's touching that they give gifts to people in assisted living! Everyone is able to feel love at Christmas time at assisted living. It was thought out gifts that impressed me. Thank you to those of you who volunteer your time at assisted living places, also. I have witnessed many volunteers who make everyone smile, every time they visit. Thank you for what you do! 

Here is how we party FTD style at our parties!  :)



Thank you for your support and thank you for reading our story!

Find the Positive!

Smile Big! 


Our mom with her grandchildren!


Thank you Paul for being our main chef & thank you to everyone for bringing the food you brought to our party!

Recipes

No-Bake Easy-To-Make Peppermint Ice Cream Oreo Crust Pie Recipe

December 20, 2017


This is a recipe that my mom would always make during Christmas time. It never failed. She would be excited to make this pie for our Christmas Eve parties.

As I look back now, I realize that my mom did everything  possible that was easy for her to do. I never realized back then, what a big job she was doing, to make us this easy-to-do pie. To us it was small, but to her it was a BIG accomplishment.

This recipe is easy for people who are just barely diagnosed with Dementia or even children can help make this recipe. Just help them out, if help is needed.

I hope you enjoy this pie, as much as my mom, loved to make it. 💓💓  

You can't go wrong with ice cream in an Oreo pie crust!


Ingredients - 

1. 1 Oreo Pie Crust

2. 1.75 Quart of Peppermint Ice Cream (You can use Mint Chocolate Chip Ice Cream, too)

3. Whipped Cream

4. Chocolate Fudge or Whatever Toppings You'd Like

5. Crushed Candy Cane

Directions -

1. Let the ice cream thaw out for 5-10 minutes. Spread the ice cream into the already made pie crust. Put as much ice cream into the pie crust that you can fit. Smooth out the ice cream at the top.

2. Put the pie cover on the pie.  Put the pie back into the freezer, and let it freeze until you are ready to eat it.

3. Thaw out the pie for just a little while, and then cut it up into slices for all of your family to enjoy!

4. Add any toppings you would like on top of each cut up piece of pie.





We hope you enjoy this easy to make pie!

What is your favorite holiday dessert?

I l
inked up this recipe at:

Happy Now Blog Linky

Winter Blues Wednesday

Real Wordless Wednesday

Marilyns Treats

The Beginning Stages

Our Missed Sign of FTD - My Mom Could No Longer Hold A Job

December 11, 2017


My mom was a computer whiz, back in the older, computer days. Back in the desk top computer days. She was such a whiz. I never got the chance to learn all that she did with the computers, back then. I would always see my mom on the computer with any free time she had. She loved scanning photos to the computer and making CD's with the photos on them. She loved typing letters on the computer, too. My mom loved it when e-mailing came out. She loved e-mailing long e-mails to others. Perhaps, maybe, I got my love of computers from my mom.

My mom had many jobs that required using a computer and customer service throughout her life. Because of this, her last job should have come natural to her. My mom worked at O.C. Tanner, O'ccurance, Classic Demos, helped my dad with his tax company with the tax paperwork, and my mom's final job had to do with multi-tasking and customer service. My mom was at this job for 5 years, when all of the sudden she could no longer keep up with the demands of her job.

My mom was slow with the computer at her final job. Her numbers were not matching up to others with the same job description. She was starting to have errors that she was doing. I remember my mom got called into her supervisors office on numerous occasions. I remember my mom was so frustrated with this. She was frustrated with herself. They gave my mom an easier job hoping she could keep up with the easier job. She couldn't keep up. 

My mom had been going through a divorce and the court process. I always heard the word, STRESS. I really just thought she was really stressed, and this to would pass. It never did just pass. It only got worse.

I will be forever grateful that my mom's job never fired her. They worked with her every step of the way. She was able to get onto disability, and continue to keep her insurance through this job that she had.

We didn't realize at the time what a BIG thing this was, that my mom no longer was able to work.

We started to get use to the fact that my mom had numerous health problems. I don't think we ever once thought, "this was a Dementia problem starting". It just seemed like my mom had an array of health problems combined, all at once.

Our missed sign of FTD was my mom no longer was able to hold a job.

There is such a big difference between someone who is lazy and does not want to work compared to someone who is trying with all their might to work, but can not work to their full ability.

My mom lost her job about 10 years before she was diagnosed with Frontotemporal Dementia.

I was in my later teens, early 20's during this time. I was trying to figure out my own young adult life while, my mom was struggling in her own life. My brother's were newly married trying to figure out their new married lives. 

#ThinkFTD #EndFTD #Dementia #FrontotemporalDementia 

Holiday Fun

My Mom Visited Santa - Ho Ho Ho

December 06, 2017



Paul had a Christmas party for his past clients this past Saturday. This was the first time that Paul and his team decided to have a Christmas party for their past clients. I wasn't sure if I was going to take my mom or not. I finally decided that it would be fun to have her take a picture with Santa Claus.

Everything went perfectly at the party, and my mom did so good. There was a lot to keep my mom entertained. My mom watched some of The Santa Clause movie, colored on Christmas coloring pages, had pictures taken with Santa Claus, socialized with her niece, listened to Christmas music, and ate some treats.

I have a picture with my mom and Santa Claus now. I've never had a picture with her and Santa, even when I was a little kid! You are never too old to take a picture with Santa Claus! Creating memories is what it is all about!  :)



It was a blessing that my mom did so well! I'm glad that my mom was able to come to a Christmas party, and everything went well. It was a Christmas miracle that she stayed for hours, and she didn't ask to leave! I was able to have fun at the party, and not have to stress about my mom.

We are thankful for everyone who attended the party!

Many thanks to the fabulous photographer who took our photos with Santa Claus!

Keil Creations Photography
www.keilcreations.com

801-755-9631

I try to look for the positive out of hard situations. This is my positive outlook right here. There is always a positive, even if there's a negative situation. You just have to search for the positive. Positivity will get you through the hard times, better than negativity will. This is what has helped me get through our FTD journey, and is what will continue to help me get through it.


We continue to wish you a Happy Holiday & a Happier 2018 coming up!


This is how I got my mom excited for the party. We dressed up for the car ride to the party! :)

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