Rare Disease Day - Frontotemporal Dementia
February 28, 2019
BUT
YES, Frontotemporal Dementia is a RARE DISEASE!
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What is a Rare Disease?
A disease or disorder is defined as rare in Europe when it affects
fewer than 1 in 2000.
fewer than 1 in 2000.
A disease or disorder is defined as rare in the USA when it affects
fewer than 200,000 Americans at any given time.
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Why is Frontotemporal Dementia a Rare Disease, you might ask?
Here is why and learn more about FTD.
· FTD affects an estimated 60,000 Americans.
*Compare this to 5.7 million people living with Alzheimer's in the US.*
· Many in the medical community are still unfamiliar with FTD.
· It takes an average of 3.6 years before getting a diagnosis.
· The onset age ranges from 21-80 years old
· FTD is the most common form of dementia for people under 60.
· FTD is frequently misdiagnosed as Alzheimer's, depression, psychiatric disorders, Parkinson's Disease, or others.
· FTD represents an estimated 10%-20% of all dementia cases.
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This day and every day (to me) is to help raise awareness to this rare disease! My whole goal & purpose of this blog has been to raise awareness to Frontotemporal Dementia. I will always be a broken record, when it comes to this disease.
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1 comments
It sounds like you have an important mission. Blessings!
ReplyDeleteThank you so much for your comment! :)