Rare Disease Day - Frontotemporal Dementia

February 28, 2019

Today is Rare Disease Day! Would you have thought that Frontotemporal Dementia is a rare disease? I wouldn't have. A form of dementia on the rare disease list? Dementia is so common! No Way! 


YES, Frontotemporal Dementia is a RARE DISEASE!


What is a Rare Disease?

A disease or disorder is defined as rare in Europe when it affects
fewer than 1 in 2000.

A disease or disorder is defined as rare in the USA when it affects 
fewer than 200,000 Americans at any given time.


Why is Frontotemporal Dementia a Rare Disease, you might ask?

Here is why and learn more about FTD.

· FTD affects an estimated 60,000 Americans.
*Compare this to 5.7 million people living with Alzheimer's in the US.* 

· Many in the medical community are still unfamiliar with FTD.

· It takes an average of 3.6 years before getting a diagnosis.

· The onset age ranges from 21-80 years old

· FTD is the most common form of dementia for people under 60.

· FTD is frequently misdiagnosed as Alzheimer's, depression, psychiatric disorders, Parkinson's Disease, or others.

· FTD represents an estimated 10%-20% of all dementia cases.


This day and every day (to me) is to help raise awareness to this rare disease! My whole goal & purpose of this blog has been to raise awareness to Frontotemporal Dementia. I will always be a broken record, when it comes to this disease.

Please help us get the word out about Frontotemporal Dementia, by clicking, below, under . . .Share This Story! Thank you! :)

You Might Also Like


Thank you so much for your comment! :)

Popular Posts